David’s Refuge, where caregivers go to be cared for

Published January 29, 2017
By Divya Murthy

At the age of 8, David Pfohl lost his vision. At the age of 10, he was diagnosed with Batten disease, a rare progressive disease that renders cells incapable of breaking down built-up waste. In 2009, just short of his 21st birthday, David died, having battled the disease for 13 years.

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