Warren's Blog

Feel Like Quitting? Keep Doing the Things You Can’t!

Thank you to everyone who stopped for a few minutes and joined me in thinking about David!  I hope you laughed and cried as hard as I did as you thought of the many ways David left his mark on this world and our lives. David was not a quitter.  No matter what curve ball was thrown at him he swung with all his might.  When David lost his vision and could no longer ride his bike, he became Evel Knievel on the scooter.  When he ran into a ...
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Thinking about David

I’m often asked by our guests if it is hard to talk about David over and over again.  His life and death is an integral part of David’s Refuge.  There isn’t a day that goes by that I don’t mention his name, tell his story, or think about the privilege I had to be his father.  As I show people the sitting room, once his bedroom, memories of watching Yankee games together, listening to Adventures in Odyssey, or quietly lying with him in his bed to comfort him during a ...
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A Lesson from Yams

Last week I met with an incredible group of parents who were part of a pilot project called CHAT, Communication Hope through Assistive Technology. Its mission is to assist youth with disabilities who communicate using technology to open their voices to the world. The kids attended a camp and the parents all met together to learn from each other and other professionals. They asked me to come and talk about David’s Refuge and the importance of self care as a caregiver. Somehow my presentation ended up talking about yams! Now ...
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Be Still!

This is a picture of a painting that hangs in David’s Refuge.  It was painted and given to us by our dear friend, Alison Fisher Cullen the day after David passed away.  Someone else owned it, but Allison went to them, told them David’s story, and they gave it back to her so she could give it to us. The painting is titled, “Be Still.”  It comes from Psalm 46:10 which says, “Be still, and know that I am God! I wished you could see the painting in person.  It ...
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Hope Was Born

I want to introduce you to some new friends of mine, Mark and Bethany.  I have known them for close to two year now.  We have laughed together, cried together, ate together, sipped wine together, sang together, and poured out our stories together.  We share a common bond in that they too are parents of a child who is severely disabled. Their daughter is 10 years old and to this day no one has been able to give them a diagnosis for her disability.  This means there are no support ...
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