Warren's Blog

Solidarity…to be in the same boat!

Today marks the fifth international Rare Disease Day.  It is a day that unites families, communities, and nations together with the common hope and belief that one day the disease that has touched their life or the life of someone they love would find a cure.  The theme this year is “Solidarity.”  It speaks of the importance and the need for collaboration and mutual support in the uphill battle of finding a cure in the field of rare diseases. The disease that robbed our son of his life, Battens Disease, ...
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I Love My Wife!

Today I am writing to share with the world my love for my wife, Brenda Pfohl!  She has been my partner, wife, and best friend for close to 28 years.   We have walked together through both thick and thin.  We were blessed with the privilege of raising three wonderful boys who we love and are so proud of.  Our journey together included watching our second son, David; succumb to the ravages of Battens Disease.   As it robbed David of sight, cognition, and physical ability we clung to each other, often ...
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“Someone else deserves this more than I do.”

Whenever I meet a family who has a child with a special need or who has a potentially life threatening disease it doesn’t take me very long to start talking about David’s Refuge.  I explain who we are and quickly invite them to consider coming to spend a few days as our guest.  Each family I talk to is unique.  Some have been caretakers for years; others have just started their first few wobbly steps on the journey of caring for their child.  Some have children with definitive multiple challenges; ...
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Guests

Guest:  “One who is a recipient of hospitality at the home or table of another.” David’s Refuge’s success rises and falls on having guests.  No guests, no hospitality.  No guests, no refreshment.  No guests, no breakfast.  No guests, no David’s Refuge.  You see, we love guests!  We love inviting them, serving them, and allowing them to find hope, refreshment, and restoration as they unplug for a few hours or days.  It’s our belief that once you come and spend a few days at David’s Refuge that you will leave ...
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God Loves You

I love the Christmas season because it is filled with traditions we have been forming for the past twenty seven years.  Whether it’s the stringing of popcorn and cranberries, putting the little candle lights in all the front windows, filling the advent calendar with candy, or reading the Christmas story from the Bible as a family, each tradition moves us as a family towards the celebration of Christ’s birth.  Like many families we struggle keeping Christ in the center of our Christmas season.  Years ago we decided that the very ...
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