Warren's Blog

It is Well With My Soul: Part II Guest Blog

“Are you serious? David is dead. For thirteen years Batten Disease robbed him of every ability he had and we are singing that all is well?” Read today's post to see why we can say, "It is well with my soul! http://www.differentdream.com/2013/11/davids-refuge-story-pt-2-it-is-well/ ...
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Check Out My Guest Post!: Part 1

I am beginning to love the possibilities and power of social media.  Several months ago my friend, Kathy Schreiber, told me I should check out @jolenephilo on Twitter.  According to her Twitter page Jolene is a: wife, mom, teacher, special needs advocate, author, blogger, national speaker, & Downton Abbey fan from Iowa Jolene is a gifted and popular writer and blogger whose heart beats for parents and families of children with special needs.  So I decided to start following her.  A few days later she started following me at @Davidsrefuge.  In ...
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Caregiver Role Strain as evidenced by…. (from a nurses perspective)

Please check out this blog written by a friend of mine, Kateri Allard.  She is a nurse and gives a very interesting perspective of caregiving from a nurse's point of view.  It is worth your time reading it.http://accordingtokateri.com/2013/10/30/caregiver-role-strain-as-evidenced-by/ ...
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Four Years! We miss you David

Four years!  Some days it feels as if it never happened, others like it was just yesterday.  As a family we huddled together in the hospital room.  Waiting.  Praying.  Struggling.  We knew we were going to be saying good-bye very soon.  His breathing was irregular.  He no longer wanted food or water.  The meds kept him sedated so he couldn’t feel pain.  Sadly it also prevented us from knowing if he could hear us.  We spoke as if he could.  We sang songs, held hands, and told him he ...
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It Takes a Village to Remind Us We Are Not Alone!

One of the most common cries we hear from parents who come to David's Refuge is an overwhelming feeling of isolation and loneliness.  Without fail when I tell our Moms and Dads we want them to leave knowing they are not alone, their eyes well up with tears and they begin to quietly weep.  It is a universal struggle for families raising children with special needs. One of the things I love doing most as I get to know our guests is to share with them the number of people ...
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