Warren's Blog

Survival Skills For The Weary Caregiver

Last week I watched my nephew and my niece's boyfriend riding a paddleboard on some very wavy water.  They balanced and paddled and battled the waves, both enjoying the challenge.  Every time a wave would knock them off they would get back on the board and try again.  I was ready for a nap after just watching them for thirty minutes.  They were determined and up for the challenge.  Eventually they got tired and hauled the board back to shore.  Oh to be young again! As I watched them I ...
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My Final Letter to David

For the past four weeks I have shared some very personal letters I wrote to David.  As Brenda helped edit my posts she would often quietly cry as she was reminded of the joy of being David's mom yet also the pain and struggle of watching her son lose so much.  I am so glad I took the time to stop and write.  To be honest I don't think we would have remembered much of those days.  It was such a privilege to care for David and to be his ...
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Dear David I Feel Helpless Today

One of the battles I struggled with as we cared for David was a sense of helplessness.  I couldn't stop the disease from progressing, I couldn't make David's pain go away, and I often felt I was failing as a father.  A dad's job is to protect their children from harm.  Sadly there was nothing I could do to protect David from the claws of Batten Disease.  I am grateful for my faith that would often remind me that while things feel and look like they are completely out of ...
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Dear David, I’m thankful for your Mom!

One of the greatest blessings I have in my life is my wife, Brenda.  For 33 years we have enjoyed the highs and lows of living together in this beautiful yet broken world.  By far the greatest challenge we have faced together was watching the devastating effects of David's disease and his ultimate death.  It rocked our relationship with each other and our relationship with God.  Often at the end of a day caring for David we had very little left over for each other.  It wasn't that we didn't ...
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Dear David…

For the next four weeks I am going to share some letters that I wrote to David near the end of his life.  One of the greatest struggles I faced as David lost more and more of his cognitive abilities was my inability to communicate to him my how much I loved him and ached for him.  I decided to start writing him letters that allowed me an opportunity to share what I was feeling and experiencing.  He never heard them or had the ability to understand them.  They were ...
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